Aphasia is a common consequence of stroke, affecting approximately 30% of stroke survivors. It involves an impaired ability to understand and use language, both spoken and written, leading to communication difficulties that persist in at least half of all cases. Another common consequence of stroke is depression, which affects roughly one third of stroke survivors. In addition, stroke is associated with an increased risk of suicidality. People with aphasia after stroke are at particularly high risk of developing depression and other mental health problems. At the same time, the communication difficulties caused by aphasia limit their access to mental health services, resulting in inadequate support despite their need and right to such care.
Unfortunately, access to assessment and treatment of mental health conditions relies heavily on verbal communication. Consequently, people with aphasia are at substantial risk of having limited access to mental health services because healthcare professionals often lack the communication strategies and adaptations required to adequately support this patient group. Knowledge about prevention, assessment, and treatment of depression and suicidality in people with aphasia is extremely limited.
The purpose of this study is to investigate the experiences of mental health after stroke in people with post-stroke aphasia and their significant others, to develop our understanding of the lived experience of people with aphasia and their significant others, what mental health support they have received, and what support they need.
People with aphasia and their significant others will participate in individual, semi-structured interviews, which will be video or audio recorded and transcribed using the AI tool Whisper. The transcriptions will subsequently be analysed with reflexive thematic analysis.
The project is funded by Uppsala University, the Swedish Aphasia Association (Afasiförbundet), the Swedish Stroke Association (Strokeförbundet), the Mental Health Fund (Fonden för psykisk hälsa), and the Swedish Neuro Association (Neuroförbundet).