SUPR
Cancer Risk Information
Dnr:

sens2024576

Type:

NAISS SENS

Principal Investigator:

Åsa Grauman

Affiliation:

Uppsala universitet

Start Date:

2024-06-28

End Date:

2025-07-01

Primary Classification:

30302: Public Health, Global Health, Social Medicine and Epidemiology

Allocation

Abstract

Cancer is the second most common cause of death in Sweden, and cancer cases are increasing in Sweden. Lifestyle plays an essential role in developing cancer. As much as 28% of all cancers diagnosed in 2018 can be linked to smoking, sun exposure, diet, overweight/obesity, alcohol consumption, physical activity and infections. This research project aims to investigate how the general public perceives their risk of developing breast- and colorectal cancer. The study will map out beliefs about causal risk factors with a special focus on modifiable risk factors, perceptions about the participants own ability to influence their risk of cancer, and how this affects what preventive measures the participants are willing to take. Furthermore, the study aim to assess qualitative preferences of the general public on how risk information about lifestyle-related risk factors should be communicated in order to avoid shame and stigma. Semistructured interviews will be held with members of the public. Study population will consist of members of the adult general public age 18 and above without a previous cancer diagnosis. Each interview is expected to last about 30-40 minutes. Approximately 30-40 individuals will be interviewed. The interviews will be audiotaped and transcribed. Any identifiable data removed for protection of confidentiality, The transcripts are analyzed with thematic content analysis. After reading the transcripts, open coding will be applied, which means that you make a summary statement (a code) of what has been said. All codes are then listed and duplicates are deleted. Similar and overlapping codes are then grouped into categories. During the analysis process, the researchers discuss the categorization and go back to the text for a constant search for understanding. The results will presented as categories and subcategories together with quotes from the participants. No individual will be identified in the final article. Lifestyle behaviors differs from other preventive behaviors such as screening attendance or self-examination of breasts in the sense that it is culturally and socially related and refers to our way of life and our private sphere. Understanding how people perceive their personal risk of developing breast- and colorectal cancer, their perception about causal factors and their preferences and acceptance for risk reducing activities is crucial for guiding general public health interventions. The knowledge gained will be used to design risk information based on peoples pre-existing knowledge and values, to avoid placing guilt on already vulnerable populations and to empower them instead. This will guide policy makers and general public health professionals to invest in interventions for which there is highest acceptance among the general public. The research study has received ethical approval (Dnr 2023-01526-01).